“When you are young and healthy, it never occurs to you that in a single second your whole life could change.” (Annette funicello)

2013 I was diagnosed with multiple sclerosis. 12 months later that changed to a diagnosis of nuero myelitis optica. This is a very rare neurological disorder that results in severe disability, paralysis and blindness. This blog describes the start of my journey with nmo.

In September 2016 my wonderfully supportive partner/ Carer had a terrrible bmx accident and became a paraplegic.We are now navigating the frustrations, the good days, the bad days, the health system together.

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